For almost a year, Lulzim has been standing on this bench near the pediatrics at QSUT. Everyone knows this is his bed and few sit in it. He is not homeless, but this is the only way to stay close to his children, who have been struggling with time since January. Emanuel and Endrina suffer from a rare kidney disease.
The 13-year-old is in a worse condition than her brother and since September, she has to do dialysis 3 times a week.
"The girl is very weak, she has cut food, dialysis is very difficult for her. However, the boy is a little different. They are very stressed. "Especially when the girl heard the doctor say that after 1 year she can be transplanted again."
Doctors in Albania have not been able to determine an accurate diagnosis of the disease, but have already said that both children should have a kidney transplant. While Lulzim and his wife have come out as suitable donors, again this intervention is dangerous. The only option for Lulzim is for the treatment of the two children to take place in Italy. An association in Italy has taken over the intervention of children. But, the family finds it impossible to cover the costs of transportation and accommodation, which cost 10 to 12 thousand euros.
"We should both be there, together with the woman, in case they have to perform the transplant. I find it very difficult, I do not know where to find the money anymore. What I had, I spent it all, I have been staying here for 1 year. "
The family lives in the village of Shëmrizë in Gramsh, in an old building, the conditions of which are very difficult. "
All my life I worked for those children, to take them to school. I myself learned a lot and did not run away from fukarallik in high school. I tried my best to take the children to study. Always saving 5 lek, so that the children can go to school. ”
Lulzim is desperate, while the health of little Endrina has deteriorated a lot in recent days. To help a little, click here .
