For almost two years, the famous singer has been fighting with a rare neurological disorder, otherwise known as "stiff person syndrome". Her illness is no longer a secret and Celine Dion has made the decision to speak to the world about this concern, with the desire to help many other people who may suffer from the same disorder.
The artist says that she will make a documentary dedicated to her rare disease, while she entrusted the realization to Irene Taylor, nominated for an Oscar.
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"These past two years have been such a challenge for me, the journey from discovering my condition to learning how to live and manage it, but not let it define me. As the road to restarting my artistic career continues, I have realized how much I have missed being able to see my fans. During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who have this diagnosis," writes Celine in her Instagram post.
The singer revealed her diagnosis in December 2022 and hasn't been out in public much since then. At the end of last year, it was Dion's sister, Claudette, who updated fans of the artist on the state of the latter's health.
But what is "Stiff Person Syndrome" (SPS)?
SPS is a rare neurological disorder with features of an autoimmune disease. This syndrome occurs in 1 in 1 million cases and is a matter of muscle stiffness. SPS is characterized by muscle sensitivity and uncontrolled movement after any stimulus, be it noise, touch, stress, etc. The disease can go so far that movement or speech becomes impossible. For the diagnosis of Celine Dion there is no specific cure, but only treatments that can slow down the development of the disease.
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Source: Instyle
